A gift from Australia

Last week I found Carly from Australia's blog - To Write Their Names in the Sand. I wrote to her, and this morning we received a precious gift...

Silver Lining

I had a really beautiful experience last night driving on the freeway to visit with a friend. I was listening to a mix Tim made with the lights of the city all around me feeling the excitement of going to a place I love.

And yet still in that beautiful moment, my grief consumed me. I was listening to River of Love, a song we sang at our last church which was in this city. It was there I met the friend I was going to visit.

River of Love
Recorded by Leslie Phillips

There's a river of love that runs through all times
There's a river of grief that floods through our lives
It starts when a heart is broken into
By the thief of belief in anything that's true
But there's a river of love that runs through all time

There's a river of love that runs through all times
There's a river of tears that floods through our eyes
We fight through the night for freedom as it fades
Into a jail where we fail everytime we make a break
But there's a river of love that runs through all time

I had to run before I knew how to crawl
The first step was hard but I have had trouble with them all
But now the night grows darker and the day grows dim
'Cause I know I never will see you again
And I almost made you happy

There's a river of love that runs through all time
There's a river of fire that burns with no light
The flame is the pain of dreams gone up in smoke
From the lies we deny and breathe until we choke
There's a river of love that runs through all time

My thoughts were centered around the bold words and some feelings I have been trying process but haven't been able to reconcile. The first step was hard but I have had trouble with them all...I was transported back to the hospital, wheeled down the hallway of the maternity floor, sitting in front of the elevator, no baby in my arms. I was leaving her there.

I had to walk to the car, into my house without her and collapse on the couch. A belly, days before filled with life, deflated in front of me, a symbol of my broken body and it's inability to care for my baby.

At this point last night, I was sobbing, driving down the highway, trying to figure out how to get it together. I didn't want my friend to know I was this upset, I want to be able to enjoy my time with her, I didn't want other people to think I had been crying. I longed to crawl up in a ball on my couch and even considered turning back.

Thankfully the next song on Tim's mix came through at the perfect moment.

Heart of Life
John Mayer

I hate to see you cry
Lying there in that position
There's things you need to hear
So turn off your tears and listen

Pain throws your heart to the ground
Love turns the whole thing around
No, it won't all go the way, it should
But I know the heart of life is good

You know it's nothing new
Bad news never had good timing
Then the circle of your friends
Will defend the silver lining

Pain throws your heart to the ground
Love turns the whole thing around
No, it won't all go the way, it should
But I know the heart of life is good

Pain throws your heart to the ground
Love turns the whole thing around
Fear is a friend who's misunderstood
But I know the heart of life is good

I know it's good

From 2,900 miles away in Seattle, I felt like Tim was speaking to me. Telling me to stop crying and go be with my friend. I reflect on how all of my friends have "defended the silver lining" and reminded me that there is still joy in life. Hopefully one day I'll find it again...

All Saints' Day

Dear Cara Grace,
Life is so incredibly painful without you. I found myself sobbing hysterically today over your absence. I miss you so much, sweetheart. I hate how my body, my awareness, the doctors - we all failed you.

I wanted to dress you up yesterday, my little pumpkin. Instead, Daddy and I hid away in the house with the lights off. Still one dark haired little princess found her way to our doorstep and reminded me of you.

I long to know who you would have become and the joy you would have brought us. Yet even in the one day we had you, you brought us so much joy. You were a marvel of a baby. Seven and a half months later the finality of your death is still setting in. I can't believe you are gone.

You are the first baby and the first saint for our church. It's a horrible honor. I can't fathom that tomorrow we celebrate you, my little wonder of a child. Honey, I miss you. I long to know you and to hold you. All around me my friends have children and are having children. You will always be missing in those friendships.

Tonight we went to Ms. E's house. We celebrated All Saints' Day with a feast of wine and good food. The table was set in fall colors, a sign of the harvest and celebration of the spirits. Mr. D offered a prayer of remembrance for those who have gone before us and missing from our gathering.

Cara, you are my greatest joy and your death is my greatest heartbreak. In you is wrapped up all of my emotions, all of my being. I'm slowly deconstructing my life and rebuilding it. Your daddy and I live our lives very different all these months later. Our focus is on enjoying life through activities that are life-giving like bike riding and playing games and watching movies together.

Tomorrow we celebrate you, that you have drawn us closer to our faith. We are still discovering what that means and will always be. There are so many things I don't understand about God - when he moves and when he doesn't and what it means to pray through that. I find myself stronger in my faith when I don't have the answers than when I do. Faith is just that, trusting in what I can't understand.

Cara, we long to have another child with us. We have all these lessons we learned that we want to put into motion and pour into your brother or sister.

I love you, my beautiful angel, gone far too quickly. Make yourself known to us. I'll be ever watching. You took a big part of my heart when you left us too soon.

Love,
Mommy

Peace of Christ

Remember this post, about my friend who I had to break off communication with. Yesterday we met for the first time since June 7th. On Wednesday I sent her an email inviting her to my home. Friday when I opened the door, we both fell into each others arms. Four and a half months is a long time to not see or speak to one of your closest friends.

We sat on the couch for two hours talking through every detail of the reason we had not been speaking. We shared our hurts, we cried, we apologized, we embraced, we talked about the future, we prayed. After Card died, we had not been in an emotional place to support each other.

It took an unbelievable amount of courage for me to get to this place. I had considered every aspect of the situation for weeks before pursuing this meeting. I was prepared for things to not go well, I was prepared for restoration, I was prepared for her not to show up. In the choose your own ending of the story, we found reconciliation. This is the most whole I have felt since Cara died. Part of me was missing and has been restored.

I am so proud of my friend. As her thoughts flowed, I could tell she was a completely different person these many months later. She has and continues to be one of the sweetest, kindest people I have ever met. I know that she loves me and I feel the same way about her.

There is more to the story. Tuesday I considered greatly pursuing this meeting. At 3:00 am Wednesday morning, I was awoken by a dream of us passing communion bread to each other and simultaneously saying, "Peace of Christ." It was such a beautiful picture that I couldn't fall back asleep. For the two days until we met, all I wanted to do was embrace my friend. Thank God that we were able to come to that moment yesterday.

October 15th & Stillbirth Awareness and Research Act

October 15th is National Pregnancy and Infant Loss Remembrance Day in the United States. More than 25,000 children are stillborn in the United States every year leaving mothers, entire families and communities devastated. Estimates of the rate of occurrence of stillbirth make it at least as common as autism.

Stillbirth is not an intractable problem. Greater research would likely significantly reduce its incidence, but good research requires good data. H.R. 5979: Stillbirth Awareness and Research Act is under consideration by Congress. This proposed bill would standardize stillbirth investigation and diagnosis, thus providing more data for the needed research. Better research means fewer children born still.

On October 15th, remember the thousands of unfinished children lost and the families who remain to grieve them. Honor them by taking action. Let's help pass H.R. 5979. (See instructions from previous posts.)

Action Steps:

Step 1. Use Your Blog to Enlist Others-Copy the contents of this entire post and publish it on your blog immediately.
GOAL: Enlist 10 of your readers to spread the word

Step 2. Use Your E-mail to Enlist Others-E-mail 5 bloggers and ask them (nicely and in an unspammy way) to publish these action steps on their blog. Consider contacting celebrity bloggers, political bloggers, medical bloggers, or bloggers who are not part of your reading community.
GOAL: Enlist 3 bloggers outside of your normal blog sphere to spread the word in other online communities.

Step 3. Help Pass the Stillbirth Awareness and Research Act-By October 15th, publish a post on your blog supporting H.R. 5979 Stillbirth Awareness and Research Act. For maximum impact, title your post: "Stillbirth Awareness and Research Act."
GOAL: 1,000,000 Google results on October 15th when that term is searched for. Currently, Google only returns 20,400 pages - most of which have nothing to do with the bill.

Source: http://lifewithoutcaden.blogspot.com/

H.R. 5979

House of Representatives Bill 5979 was introduced by Peter King of NY in May 2008. This bill is currently referred to the Committee of Health with 13 cosponsors. The more cosponsors a bill has the more likely it is to pass. You may veiw the Bill Status page to find a list of cosponsors.

There are a few key points to the bill:
*Acknowledges that many states do not issue a Certificate of Stillbirth, but a Death Certificate.
*Creates a National Registry to track the causes of stillbirth
*Creates a standard for the information collected about the mother
*Requests a standard to define stillbirth
*Expresses the request for more funds to be allocated to stillbirth research

Taking action is easy! Your letter could make a significant impact on the number of cosponsors this bill receives.

1. Identify your Representative.
Go to the United States Postal Service to determine your 9-digit zip code
Go to the House of Representative to determine your Representative
2. Write your letter. We have included a sample letter below that was distributed by First Candle
3. Submit your letter via either your Representative's website or mail
4. Would love to hear from you in the comments section that your letter was sent!!
**********************************************************

Dear Representative ________________:
I am writing to ask you to co-sponsor legislation that would help the CDC and researchers better determine the risk factors associated with stillbirth and convey those risk factors to expectant parents.

House of Representative Bill 5979, the Stillbirth Awareness and Research Act of 2008, was introduced by Representative Peter King of New York in an effort to address the lack of standardized data collection nationally with regard to stillbirth.

Each year more than 25,000 babies in the United States are stillborn. More than 50 percent of these deaths occur in the last trimester of pregnancy and 15 percent occur during labor and delivery. Due to a lack of autopsy/investigation and inconsistencies in diagnosing these, more than 50 percent of all stillbirths remain unexplained.

With standardized investigation and reporting of these deaths, researchers would be better able to determine the risk factors. H.R. 5979 would both standardize the definition of stillbirth and the method in which data is collected, in order to create a national repository of stillbirth data to assist researchers in conducting comprehensive studies in to the causes of, and possible preventive strategies for, stillbirth. The bill also authorizes a public awareness campaign promoting good prenatal practices, including monitoring movements during the last trimester of pregnancy, to reduce the risk of stillbirth.

This legislation is important to me because (insert your personal story here.)

Thank you so much for your consideration of my request.
(insert name and contact information here)

Preventing Stillbirth and SUID Act of 2008 (S. 3142)

June 17, 2008 Senator Barack Obama introduced the Preventing Stillbirth and SUID Act of 2008 (S. 3142). Much like House Bill 5979, the bill calls for a national repository for tracking stillbirth related deaths, as well as standardizing the collection of information related to a stillbirth. The bill currently has 5 cosponsors.

This is an election year and obviously one of the candidates is the bill originator. Regardless of where you stand with the election, we ask that you would consider the value of this legislation for the thousands of children who are born still in the U.S. each year.

Please write to your Senator asking him/her to sponsor this important piece of legislation.

The Bill Summary page outlines the main points of the bill. The Bill Status page displays links to various details associated with the bill.

Again taking action is easy! Your letter could make a significant impact on the number of cosponsors this bill receives.

1. Identify your Senator's contact information. Go to the Senator Contact Information page. You may filter the list by State. Then follow the link to your Senator's specific site.
2. Write your letter. We have included a sample letter below that was distributed by First Candle
3. Submit your letter via either your Senator's website or mail
4. Would love to hear from you in the comments section that your letter was sent!!
**********************************************************
Dear Senator________________:

I am writing to ask you to cosponsor legislation that would help the CDC and researchers better determine the risk factors associated with stillbirth and convey those risk factors to expectant parents.

Senate Bill 3142, Preventing Stillbirth and SUID Act of 2008, was introduced by Senator Barack Obama of Illinois in an effort to address the lack of standardized data collection nationally with regard to stillbirth.

Each year more than 25,000 babies in the United States are stillborn. More than 50 percent of these deaths occur in the last trimester of pregnancy and 15 percent occur during labor and delivery. Due to a lack of autopsy/investigation and inconsistencies in diagnosing these, more than 50 percent of all stillbirths remain unexplained.

With standardized investigation and reporting of these deaths, researchers would be better able to determine the risk factors. S.3142 would both standardize the definition of stillbirth and the method in which data is collected, in order to create a national repository of stillbirth data to assist researchers in conducting comprehensive studies in to the causes of, and possible preventive strategies for, stillbirth. The bill also authorizes a public awareness campaign promoting good prenatal practices, including monitoring movements during the last trimester of pregnancy, to reduce the risk of stillbirth.

This legislation is important to me because (insert your personal story here.)

Thank you so much for your consideration of my request.
(insert name and contact information here)